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#1 2017-11-15 06:07:43

Registered: 2017-10-21
Posts: 1,079

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Took tamoxifen 9 months. Extreme bruising. Switched to Arimidex. After 4 weeks, extreme pain in hand. Next severe headaches. Each month brought increased pain in thumbs, hand, feet, long leg bones. Joints hurt, wrists weaken every month. After 10 months became depressed and had insomnia. Finally, had enough and stopped. Within, 2 weeks long bone pain went away. I still have some knee pain, trigger finger, and wrist weakness and its been 3 months. Doctor switching to Aromasin next month.

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Endometrial stromal sarcoma: I've been on this medicine since hysterectomy/pathology report in March, about five months. Too soon to tell if it is working but so far so good. The side effects are as stated by many already...increased joint pain and stiffness everywhere and especially hands and feet, increased weight, minor and occasional dizziness, increased feeling of tiredness. I'm going to request a bone density scan to monitor risk of osteoporosis. It is all tolerable so far, but I hope it doesn't get worse and I hope none of it is permanent.

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